Adrenal Network
Welcome to the Adrenal Network Registry

A5 - American Australasian Asian Adrenal Alliance

Contact information

David A. Madrigal, MS
1150 W. Medical Center Dr.
5570 MSRB 2
Ann Arbor, MI 48109

Phone: (734) 647-5661
Fax: (734) 763-1725
Pager: 35939
Email: a5adrenalalliance AT med DOT umich DOT edu

This registry, developed by the Melbourne eResearch Group based at the University of Melbourne, provides a means of connecting the data from the specialist centres across the world within a single Virtual Research Environment (VRE).

Links and Documentation

For help and guidance in using the registry, please refer to the documents below:

Registry User Guide

Registry Data Dictionary

Browser Security Guide

Lysosafe Connection Guide

Rules and Responsibilities

Use of the registry is subject to certain rules and responsibilities constituting fair usage and protecting the rights of patients whose details are contained within the registry, as well as the clinicians. In summary these include:

Additionally, ethical consent for storing patient information in the registry will need to be obtained according to the statutes of your country and institution.

An example English language consent document can be found here and used as a template: Consent document example


For any technical queries about the registry please contact Anthony Stell, or Prof Richard Sinnott.